living well and dying with dignity
Sometimes in my Facebook Support Group, a post begins with the phrase positive post. This usually precedes a report about something that brought joy or balance to the writer. Often this kind of post is about holding steady during an event like attending a graduation or birthday party. These little successes are wildly celebrated, with … Read more
During my quest for information about myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome, I found a video series by Giles Meehan called “Get Well From ME”. Watching the series helped me to understand ME, other invisible illnesses, and my own circumstances more fully, which was a comfort. The series also helped me to … Read more
The learning curve for my new health situation has been complicated, more like a labyrinth with its many twists and turns. I’m grateful for the Bateman Horne Center, where I learned more about myalgic encephalomyelitis (ME) also known as chronic fatigue syndrome (CFS). The Bateman Horne Center’s support groups and educational videos helped me to … Read more
To preface my commentary on the Push-Crash Roller Coaster (PCRC), I need to first say some things about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Post Exertional Malaise (PEM) and brain fog. Since 2020 I’ve been under doctor’s care for what was diagnosed as new allergies and idiopathic anaphylaxis. After a trigger event late in 2023, I … Read more
It’s taking time for me to understand and adjust to my health challenges being chronic. The word comes from the Greek root word “khronos” meaning time. The dictionary meanings are: continuing or occurring again and again for a long time; always present or encountered and especially vexing, weakening, or troubling; being, providing, or needing long … Read more